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the Transparency in Maternity Care Project Overview
Goals
Objectives
Vision


 
Transparency Bring Transparency to Maternity Care
Links to resources on Transparency


 
Project Timeline When will the project be available in your area?
New York City Pilot (Why New York City?)
DEMO Survey
     

OVERVIEW

The Transparency in Maternity Care Project was birthed in February of 2006 by the Grassroots Advocates Committee (GAC) of the Coalition for Improving Maternity Services (CIMS). We are a volunteer group dedicated to ensuring public access to quality of care information specifically related to maternity care providers and institutions. It is our intention to extend the current social trend toward transparency in health care into the virtually overlooked maternity care arena.

The Birth Survey is structured around the Coalition for Improving Maternity Services (CIMS) evidence-based 10 Steps to Mother-Friendly Care and other quality of care indicators. The creation of The Birth Survey has been inspired by Childbirth Connection's Listening to Mothers Survey (Harris Interactive, October 2002) and the A-CAHPS (Ambulatory Consumer Assessment of Healthcare Providers and Systems) program and surveys.

We believe that women of childbearing age must have access to information that will help them choose maternity care providers and institutions that are most compatible with their own philosophies and needs. We hope that the Transparency in Maternity Care Project will provide information that will help women make fully informed maternity care decisions.

We also believe that maternity care practitioners and institutions must have access to feedback from their patients. We hope that doctors, midwives, and hospital administrators will find the information generated through the Transparency in Maternity Care Project useful in quality improvement efforts.

Women need accurate, objective data in order to make fully informed choices about birth settings and providers. Practitioners and hospital administrators also need data to evaluate whether they are delivering quality care. We hope this project will fill a void by providing much needed information that benefits all parties engaged in maternity care.

GOALS

Our goal is to give women a mechanism that can be used to share information about maternity care practices in their community while at the same time providing practitioners and institutions feedback for quality of care improvement efforts.

At the heart of the project is an on-going, online consumer survey, The Birth Survey, that asks women to provide feedback about their birth experience with a particular doctor or midwife and within a specific birth environment. Responses will be made available online to other women in their community who are deciding where and with whom to birth. Paired with this experiential data will be official statistics from state departments of health listing obstetrical intervention rates at the facility level.

FOUR PRIMARY OBJECTIVES

Objective 1
Annually obtain maternity care intervention rates on an institutional level for all fifty states.

Objective 2
Collect feedback about women’s birth experiences using an online, ongoing survey, The Birth Survey.

Objective 3
Present official hospital intervention rates, results of The Birth Survey, and information about the MFCI in an on-line format.

Objective 4
Increase public awareness of differences among maternity care providers and facilities and increase recognition of the MFCI as the gold standard for maternity care.

VISION

We are dedicated to improving maternity care for all women. We will do this by 1) creating a higher level of transparency in maternity care so that women will be better able to make informed decisions about where and with whom to birth and 2) providing practitioners and hospitals with information that will aid in evaluating and improving quality of care.

BRINGING TRANSPARENCY
TO MATERNITY CARE

In the US, it is nearly impossible to access information about the quality of an individual health care provider or institution.The 2001 Institute of Medicine report, Crossing the Quality Chasm, underscores transparency as one of ten key steps necessary to overall health care system improvement. As national quality improvement initiatives continue to grow, maternity care must be included in this movement. The US spends more on maternity services than any other country in the world, yet we have the highest rates of infant death of all developed nations .1 The US also has one of the lowest vaginal birth rates in the world even though cesarean section carries greater risks to mother and baby. Despite emphasis on evidence-based medicine, cost-containment, and patient safety, the overuse of medical technology continues to rise without concomitant improvements in maternal or infant outcomes. Indeed, studies show that the inappropriate imposition of procedures, drugs, tests, and restrictions increase maternal and newborn morbidity and mortality. Although institutes, universities, and foundations are engaging in research or developing projects to increase health care transparency, currently, no significant consumer-led national effort is underway to share health care or maternity care information. A mechanism to share, systematically track, and retrieve up-to-date information about the quality of care received would equip consumers with the information necessary to make informed decisions and enable individuals to play a larger role in determining their care.

ARTICLES ON TRANSPARENCY

  • Transparency in Health Care: The Time Has Come. By Sara R. Collins and Karen Davis. Accessible here.
  • Public Reporting and Transparency. By John M. Colmers. Accessible here.
  • The quality of health care delivered to adults in the United States. Beth McGlynn et al. Accessible here.
  • Does Publicizing Hospital Performance Stimulate Quality Improvement Efforts? By Judith H. Hibbard, Jean Stockard and Martin Tusler. Published in Health Affairs, accessible here.
  • The implications of regional variations in Medicare spending. Part 2: health outcomes and satisfaction with care. By Elliot Fisher. Accessible here.
  • Dartmouth-Hitchcock Medical Center Health Information and Quality Reports. Accessible here.
  • Public Reporting of Health Care Performance in Minnesota. By G. Mosser and S. Scheitel. Accessible here.

PROJECTED PROJECT TIMELINE

Year 1 Year 2 Year 3
July 2007 -
June 2008
August 2008 -
ongoing
January 2009 -
ongoing
Pilot project
in NYC
National project
release
Additional features available

 

WHEN WILL THE PROJECT BE AVAILABLE IN YOUR AREA?

As of April, 2008, The Birth Survey is available across the U.S. This includes both the survey itself and the overall consumer ratings. Free-Text data will be added to the ratings in 2009. Detailed custom reports generated from the in-depth consumer feedback captured through The Birth Survey are in development and will expand upon the information availavle on The Birth Survey Results. These will provide much more detailed categorical information about women's care with specific providers and facilities. These will be available in 2010.

To volunteer or get more information please e-mail info@thebirthsurvey.com.

We are looking for volunteers to help develop this project, obtain intervention rates for institutions in all 50 states, and help get the word out about the project, please e-mail info@thebirthsurvey.com.

NEW YORK CITY PILOT

The Grassroots Advocates Committee partnered with Choices in Childbirth in piloting the Transparency in Maternity Care Project in New York City. The project launched in the summer of 2007 and, for the first year, was available only to women who gave birth in any of the five boroughs of NYC. On July 21, 2007 we held a Birth Fair in Union Square to announce the launch of The Birth Survey in NYC.

Why New York City?

There were many reasons to choose New York City as our pilot site.

First: New York is a large, high profile city offering a wide variety of birth options.

It is a densely populated and well-networked urban center.
There is easy access to multiple press/media outlets.
Approximately 125,000 births occur in NYC per year.
Forty-four hospitals provide maternity care services.
The majority of the country's obstetricians are trained in NYC.
Two Free-standing Birth Centers are in operation.
An established homebirth community thrives.
Nearly 10% of births in NY are attended by midwives.

Second: The Grassroots Advocates Committee piloted the project in partnership with Choices in Childbirth (CIC), an active grassroots organization based in NYC.

CIC is well connected with the NYC birth community. CIC publishes The New York Guide to a Healthy Birth - in 2007, 20,000 copies advertising The Birth Survey will be distributed free to the public. A member of the GAC and CIC is based in NYC and was engaged in the day-to-day oversight of the pilot.

Third: New York State is one of only two states with a Maternity Information Act.

The MIA provides the public with legal access to intervention rates at the facility level. Choices in Childbirth is connected with the NYS Department of Health and has already collected the intervention rates for all New York hospitals.

DEMO Survey

Please click here to see a DEMO of The Birth Survey. This demo survey is for review purposes only. It's designed for hospital administrators, providers, and potential GAC ambassadors who want to review the survey. Responses to this demo survey will not be saved in our real survey database or included in the feedback results for care providers or facilities. This demo survey is an exact replica of the New York City Pilot Survey. Please note we recommend reviewers go through the survey several times to experience different question paths based on different childbirth experiences (ie. vaginal, c-section, birth settings, etc).

If you are a mother looking for the real survey where you can give feedback about your doctor, midwife, hospital, birth center or home birth service please click . This will take you back to the home page. Once on the home page click "take our survey" to start the real survey.

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1.Child Health USA 2001, Maternal Child Health Bureau, Health Resources and Services Administration, US Department of Health and Human Services, p. 22